#ECCAM2023 ‘Step Up for CRC’
A heartfelt thank you to all the participants and speakers who made #ECCAM2023 ‘Step Up for CRC’ such a success! Your commitment to raising awareness for colorectal cancer is greatly appreciated. We look forward to continuing our efforts to make a difference in preventing Colorectal Cancer and enhancing the quality of life of patients and their carers.
In 2020 CRC took the lives of 240.000 Europeans, devastating their families and loved ones along the way. CRC is Europe’s second and third most common cancer in women and men, respectively.
Every March, since 2008, first with EuropaColon and continued in 2018 when we rebranded to Digestive Cancers Europe (DiCE), we have led the European Colorectal Cancer Awareness Month (ECCAM) campaign to improve awareness of CRC.
At this year’s event, DiCE launched STEPAPP, a free mobile app that counts your steps. STEPAPP aims to further engage with the general public and provide an opportunity to learn about CRC and ways by which it can be prevented (e.g. by talking about a healthier lifestyle through walking), as well as to raise awareness about Digestive Cancers Europe and its national Member Organizations.
How to join
Joining our Step Up for CRC event is free and easy.
To get involved, simply download our free mobile app STEPAPP and get moving!
In addition to raising awareness on Colorectal Cancer and the importance of prevention, we are also raising funds for DiCE and its Member Organisations. There are many CRC charities you can raise funds for.
Find out more about our members here.
How it works
Our app will measure your daily steps through the technology on your smartphone, and add them to the total steps taken by walkers all around Europe. We want to see that number get as large as possible.
Agenda
Lieve Wierinck
Along with being a pharmacist and a former cancer patient, Lieve’s career in politics means she applies her medical, patient and policy expertise to her work as Chair of the DiCE Board.
Lieve Wierinck was a Member of the European Parliament (ALDE – Liberal Democrats) until 2019. She was a member of the Committee on Industry, Research and Energy (ITRE). In that capacity, she strove to improve the innovation and competitiveness of Europe.
She was also a member of the informal groups “MEPs Against Cancer” (MAC), and the MEP Interest Group on the Patient Access Partnership (PACT). Earlier this year, Lieve Wierinck received the Parliament Magazine Award for the Best Health MEP.
Lieve was a member of the Belgian Parliament from 2011 to 2014. She was Chair of the National Women’s Group of the Flemish liberal party (Open VLD) from 2014 till 2017. She was a member of the Municipal Council of Zaventem from 1994 to 2018, and also the Chair of the Local Public Welfare Office (OCMW) for twelve years.
She also worked as a pharmacist for 30 years in Zaventem. She is a colon cancer survivor.
Zorana Maravic
A part of Europacolon and now DiCE since 2012, Zorana has always worked closely with our Full Members and Associate Members. With grace, poise and calm, she is working to help Members’ organisations and DiCE grow.
As CEO, Zorana continues her commitment to DiCE taking on the management of the organisation and ensuring the delivery of its missions and goals. In her past role as Director of Operations she was responsible for the co-ordination and support of Member groups, as well as strengthening the network, through establishing relationships with new organisations. During this she has proven her capacity to deliver successfully. Key projects have included:
- A Survey on the Unmet Needs of Patients Living with Metastatic Colorectal Cancer (mCRC). She recruited more than 800 patients and had the results under her authorship published widely
- DiCE events: Masterclass events – an educational annual meeting for Member groups
- Awareness campaigns including European Colorectal Cancer Awareness Campaigns (ECCAM)
- Pharmaceutical industry and independent consortia projects
- Developing patient support materials with the Patient Advisory Committee (PAC)
Zorana also acts as a public speaker on topics such as patient support, biosimilars and CRC screening. From 2016 until 2018, Zorana served as a Board Member of EuropaColon.
Before working in the Not-For-Profit sector, Zorana worked for 10 years in the pharmaceutical industry, primarily in sales and marketing of innovative oncology drugs as well as on oncology clinical trials.
She holds a degree in molecular biology from the University of Belgrade, Serbia. In 2017, at the University of Sheffield, UK she gained an Executive MBA in Health Management.
Andi Cârlan
Andi Cârlan is a 39-year-old Romanian, husband, and father of two wonderful girls. He has been working in the pensions and life insurance industry for over 14 years and has built his career in employee benefits, corporate sales, financial advising, training and consultancy. He’s an active volunteer, civic activist, #bloodfluencer, donor and occasional fundraiser, involved in civic social movements, blood donations, social cases and in 2022 in the Ukrainian refugees’ crisis in Romania.
In May 2019 at 36 he received the diagnosis of having Stage III Colon Cancer, which was treated with surgery and chemotherapy. Two years later, in July 2021, it came back in the form of a liver metastasis that was surgically removed in September. Unfortunately, in February 2023 he has just found out that the cancer is back again, in his liver, and he will continue fighting it.
Since 2020, he has been advocating for cancer patients in Romania, helping them to cope with cancer and to understand about disease and their treatment options. He also works to share positive ways of dealing with the new life that cancer brings.
He also writes a blog (in Romanian) that documents his journey with cancer and other social, medical and educational themes.
By advising DiCE through the Patient Advisory Committee, he is looking to spread the word further and help others on a European level.
Kateřina Konečná
She was born on 20 January 1981. In 2002 became the youngest MP of the PSP CR. She also graduated from Masaryk University with a bachelor’s and public administration degrees. With a break of several years, she continued her studies at the University of Finance and Administration, where she received a degree in engineer in 2009 in the field of public administration.
In the May 2010 elections, she led the KSČM candidate in the Moravian-Silesian Region. In 2014, She was elected a member of the European Parliament, where SHE defended the interests of Czech citizens. In the European Parliament, she was a member of the Committee on the Environment, Public Health and Food Safety (ENVI) and vice-chair of the Special Committee on the Union Procedure for the Authorization of Pesticides (PEST).
In 2019, she defended her mandate in the European Parliament and became the only left-wing MEP from the Czech Republic. She is currently a member of the Internal Market and Consumer Protection Committee (IMCO) and the Transport and Tourism Committee (TRAN). She is also a full member of the Delegation to the Parliamentary Committee for the EU-Armenia Partnership, the Committee for Parliamentary Cooperation EU-Azerbaijan and the Parliamentary Committee for the EU-Georgia Association and the Delegation to the Euronest Parliamentary Assembly.
Deirdre Clune
Deirdre Clune is a Member of the European Parliament for the constituency of Ireland South, having been elected in 2014 and re-elected in 2019. She is a full member of the Parliament’s Committee on Internal Market and Consumer Protection and a substitute member of the Environment, Public Health and Food Safety.
Deirdre graduated from University College Cork in 1980, with a B.E. in Civil Engineering. She completed a diploma in Management Engineering with Trinity College Dublin in 1983. She returned to UCC in 1996 to complete her HDip in Environmental Engineering. Deirdre went on to work with some of the leading engineering firms both here at home and overseas, including Delap & Waller, Roughton & Partners and Arup.
Deirdre is a former member of the Dail Eireann (1997-2002, 2007-2011) and Seanad Eireann (2011-2014). She was elected Lord Mayor of Cork City in 2005, in which time the City was designated as the European Capital of Culture.
During her time in Leinster House, Deirdre was Deputy Spokesperson on Enterprise with the Special Responsibility for Innovation. She was also the Fine Gael spokesperson on Environmental Information and Protection, and Arts, Heritage, Gaeltacht and the Islands.
Deirdre’s father, Peter Barry, was a Dáil Deputy for Cork constituencies between 1969 and 1997 and served as Tánaiste in 1987, Deputy Leader of Fine Gael between 1979 and 1987 and from 1989 to 1993. He was also a Minister for Foreign Affairs, the Environment, Transport & Power and Education.
Her Grandfather, Anthony Barry was a Dáil Deputy in the 1950’s and early 1960s.
Deirdre became the third of her family to hold the mayoralty in Cork, following in the footsteps of her father, Peter who was Lord Mayor of Cork in 1970/71 and her late grandfather, Anthony who was Lord Mayor in 1960/61.
- Primary Prevention: Physical Activity as a Protective Factor for Cancer Onset
- Secondary Prevention: The Importance of CRC Screening Programs
- Tertiary Prevention: Rehabilitation and Quality of Life for CRC Patients
Casper Simonsen
Dr Simonsen is the Group Leader of the Cancer Group at the Centre for Physical Activity Research (CFAS), Rigshospitalet, Denmark. At the Centre for Physical Activity Research, our main research focus is to develop exercise as medicine for patients with chronic diseases such as type 2 diabetes, chronic obstructive lung disease, cardiovascular disease, and cancer.
Through translational research and knowledge dissemination, we aim to develop targeted exercise training regimes for specific disease groups by applying a translational strategy: “from bedside to bench and back.”
Dr Simonsen has undertaken exercise-trials in patients with digestive cancers, including colorectal and gastroesophageal cancer, with a translational focus to elucidate the biological mechanisms, clinical effects, and practice-based implications of exercise training in the oncology setting.
Catherine Sauvaget
Dr Catherine Sauvaget is a medical scientist within the Early Detection, Prevention and Infections Branch of the International Agency for Research on Cancer, the research agency of the World Health Organisation.
The aims of the Branch are to evaluate strategies for cancer prevention and early detection, with a view of reducing the cancer burden and improving survival and quality of life of patients after treatment; and to support capacity-building and assess interventions in real health-care settings.
Dr Sauvaget collaborates with ministries of health in several countries, mainly low- and middle-income countries, and assists them in planning and implementing quality-assured cancer control programmes, including training of health professionals and researchers in the field of cancer prevention.
Ana Ruiz-Casado
Ana Ruiz-Casado, MD PhD, is a medical oncologist specialised in gastrointestinal cancer. She has led some research projects in the area of exercise and cancer.
She has co-authored 15 articles in the field of lifestyle in cancer survivors, mainly addressed to physical activity. She also has co-authored 30 articles in the field of gastrointestinal cancer therapies.
Patricia Kramarova
Patricia is a volunteer, responsible for international communication and international projects in the platform “No to Cancer Slovakia”, established by nonprofit organization Europacolon Slovakia.
Patricia has been interested in the prevention of the disease since her studies of Public Health at Slovak Medical University in Bratislava. After getting PhD. in Public Health, Patricia started carrier in the pharmaceutical industry as Clinical Planning & Analytics Manager.
Hana Nimer
Hana finished B.A. in Psychology at the Lebanese American University, Beirut, Lebanon. She founded SAID NGO in 2019 after losing her husband, Said, at the age of 59 to colon cancer, even though they had a family doctor who used to do annual physical checkups but never asked for a colonoscopy or F.I.T. screening.
Since losing anyone to this cancer is unacceptable because of a lack of awareness, she founded SAID NGO (Decree 324/2016) and named it after him. At the same time, it stands for Spread Awareness Increase Detection (S.A.I.D.) with a three pillars mission:
- Awareness
- Advocacy
- Support
Ruel Jacob
As Communications Manager, Ruel will contribute to the DiCE’s activities in the domain of events, promotion and internal/external communications to build connections and increase public awareness and ultimately bring value to a more significant number of digestive cancer patients in Europe.
Ruel is an experienced communication practitioner with a demonstrated history of working in several European associations in Brussels. Skilled in communication management, social media strategy and customer satisfaction, Ruel is a marketing professional with a Master of Science in Communication Studies focused on New Media and Society in Europe from Vrije Universiteit Brussel.
His enthusiasm for digital media and communications motivates him to excel while building relationships, organising projects and inspiring optimism.