Patient Voices
Are you a Patient or a Carer who would like to get your voice heard? Like the people below, would you like to share your story, be a Patient expert at the table with medical and scientific professionals and help others like you in turn? DiCE develops and runs various projects that strive to help Patients and Carers by drawing on the important foundation of first-hand expertise. If this is something that interests you and you would like to know more please contact Ghislaine Gibier, DiCE Administrative Manager.
Leon
Hello, my name is Leon. I’m 45 and I live in Tilburg in the Netherlands close to the Belgian border. I work for Stichting Darmkanker (Colon Cance...
Hilde
I am Hilde, a mother of two, partner, medical doctor, and a Lynch patient. I am the first in my family with this diagnosis. When I was diagnosed wi...
Angelica
Angelica is a survivor and patient advocate who does not take no for an answer! She lives in Sweden and volunteers closely and personally with canc...
Andi
My name is Andi and I’m a 39 years old Romanian, husband and father of two wonderful daughters. I’ve been working in the Pensions &...
Mike
Hi, my name’s Mike and I live outside of Paris, France. I’m originally from the UK but have lived in and around Paris for the last 25 years. I ...
Stephen
I am a colorectal cancer survivor. My local hospital asked me to set up a peer support group. We planned a launch in spring 2020, but so did COVI...
Laure
I am the caregiver of my husband, Guillaume, who was diagnosed with metastatic colon cancer in January 2021 at 43. We have two children who are now...
Radek
Hello, my name is Radek. I would like to share my story with you about living with pancreatic cancer. It began with the onset of jaundice that made...
Samo
Hello I’m Samo. I’m pleased to be able to share my story with you as I want it to be an inspiration for everybody who turns 50 and consequently...
Vincent
Hi, I’m Vincent, I’m from Gouda in the Netherlands and I was diagnosed in 2015 at 42 years old with stage IV colorectal cancer and a low-grade ...
Patrycja
Patrysza spoke about her journey with pancreatic cancer at our Masterclass 2021 – she shared the importance of mental health for her life with th...
Eva
Eva shares her experiences with pancreatic cancer and the importance of staying physically fit throughout the process – from diagnosis throug...
Barbara
No-one expects to get cancer. No matter what the statistics show, very few people relate the figures to themselves and, I must admit, it was the sa...
Stefan
I’m Stefan. I’m a co-founder of Digestive Cancers Europe and was the organisation’s CEO from 2019 to the beginning of 2021. I would like ...
Dave
Dave Chuter, active patient advocate was diagnosed with oesophageal cancer in 2006. Following successful treatment, he returned to work and alongsi...
Milan
By the end of 2000 I felt very tired. Urges of going to the bathroom were sudden and harder to control. I also often felt very sleepy during the da...
Daksha
Dr Daksha Trivedi is a Senior Researcher in Public Health at the University of Hertfordshire in England. Daksha was diagnosed with oesophageal canc...
Ireneusz
It is with great sadness that we recognize the passing of Ireneusz in December 2021. He leaves behind his wife Beata. Ireneusz was very active and ...
Anikó
Anikó from Hungary was diagnosed with hepatocellular carcinoma (HCC) in 2015. HCC is the most common type of liver cancer accounting for approxima...
Heidi
Until April 29th, 1999, when I was 45, I was absolutely convinced I had the lease of eternal life. I had a sweet daughter , a careful husband and a...
Marta
“Have you had a colonoscopy?” I was asked this question by my new doctor the first time that I saw him after I retired. I had been a he...
Celeste
“When I was first diagnosed with colon cancer it was quite complicated because I did not know what I had…” Listen to Celeste̵...
Robyn
I first realised something was wrong when – at 28 years old – I collapsed. It was 2005, and I was taken to hospital for several tests after it ...
Find your local patient organization
Local digestive cancer patient organizations will help you finding the best support in your country.
Discuss with other patients
Talking to other digestive cancer patients can help a lot. You can find tips and tricks, or simply get some relief while talking to other patients with similar problems.
Find other patients through our Facebook page