Privacy Policy – Early-Onset Digestive Cancers Awareness Survey (HCPs)

Issued by Digestive Cancers Europe (DiCE)

1. Purpose of This Policy

This Privacy Policy outlines how Digestive Cancers Europe (DiCE) collects, uses, and protects personal data as part of the Early-Onset Digestive Cancers (eoDC) Awareness Survey targeting healthcare providers (HCPs). DiCE is the data controller and processor for this survey and ensures full compliance with the EU General Data Protection Regulation (GDPR) and applicable Belgian law.

2. What Data Is Collected?

The survey collects limited personal data to support analysis across healthcare provider profiles. This may include:
– Professional role and specialty
– Years of clinical experience
– Country of practice
– Responses to awareness, diagnostic practice, and support pathway questions

No directly identifying personal information (such as your name, email, or IP address) will be collected unless you voluntarily provide it (e.g. to subscribe to a newsletter or express interest in follow-up involvement).

3. Why Is This Data Collected?

The data will be used to:
– Assess awareness, diagnostic behaviors, and systemic barriers related to early-onset digestive cancers among HCPs
– Identify unmet educational and system-level needs
– Inform DiCE’s policy recommendations and awareness campaigns
– Optionally, offer you opportunities to stay connected with DiCE’s work (if you opt in)

4. Legal Basis for Processing

Your participation is voluntary and based on informed consent. By proceeding with the survey, you consent to the processing of your answers for the purposes described above.

5. Data Storage and Retention

All survey data will be securely stored on GDPR-compliant platforms. Anonymized data may be used for statistical analysis, reports, or scientific publications. Any data that could be linked to you (if applicable) will be stored no longer than 2 years, after which it will be deleted or anonymized.

6. Who Has Access to Data?

– Data is processed by the authorized team at DiCE.
– Aggregated, anonymized findings may be shared with DiCE stakeholders (e.g., researchers, public health bodies, advocacy partners), but no individual responses will ever be identifiable.
– Your data will not be sold or used for commercial purposes.

7. Your Rights Under GDPR

As a data subject, you have the right to:
– Access the data we hold about you
– Request correction or deletion of your data
– Withdraw consent at any time (if you provided personal data)
– Lodge a complaint with your local supervisory authority

For Belgium:
Data Protection Authority
Rue de la Presse 35, 1000 Brussels
Email: contact@apd-gba.be
Website: https://www.gegevensbeschermingsautoriteit.be

8. Contact Us

If you have any questions about this privacy policy or your data rights, please contact:

Digestive Cancers Europe (DiCE)
Email: natasha@digestivecancers.eu
Website: https://digestivecancers.eu

9. Consent to Participate

By clicking “Next” to begin the survey, you confirm that:
– You have read and understood this Privacy Policy
– You voluntarily agree to participate
– You consent to the processing of your responses for the purposes outlined above