Early-Onset Colorectal Cancer:
Your Experience Matters
Colorectal cancer is increasingly being diagnosed in adults under 50. Yet awareness remains low, and many younger people still face delays before receiving a diagnosis. This upcoming survey aims to better understand the experiences of people affected by early-onset colorectal cancer across Europe.
Your insights will help support advocacy for earlier recognition, more appropriate guidelines, improved prevention, and better care for younger patients. The survey is currently in development.
Meet the members of the Advisory Board
Patients
Cécile Duchesnes
Cécile Duchesnes is a medical writer, patient advocate, and mother of three, originally from France and now living in the UK with her husband and ...
Jude Mifsud
Jude Mifsud is a patient advocate based in Cheshire, England, and a bowel cancer survivor. Diagnosed with stage III bowel cancer at the age of 33...
Lasma Nikolaisone
Lāsma Nikolaisone is a colorectal cancer survivor from Latvia, diagnosed with rectal cancer in 2019 at the age of 33. Since 2023, she has been a...
Laure Chotel
Laure Chotel entered the world of cancer in January 2021 with her husband’s diagnosis of incurable metastatic colorectal cancer at 43 years o...
Liliana Mackowiak
People often ask me, how did you find out? Well, I entered that unknown territory, which no one wants to pass through when I was 37. I was thinki...
Louisa
Louisa was diagnosed with Stage IV colorectal cancer in 2021, at age 49, and given a prognosis of 1.5-3 years. Thanks to a number of emerging inter...
Michael Kecht
Michael Kecht is a colorectal cancer survivor and patient advocate. Diagnosed with stage IIIC early-onset CRC at the age of 28, he has since dedica...
Mila Ogalla Toledo
Mila is a Patient advocate and Communication Specialist. My work is driven by my lived cancer experience and a strong commitment to equity, diversi...
Natalia Muñoz-Wolf
Natalia Muñoz-Wolf, PhD, is an experienced translational scientist in immunology and immuno-oncology. Formerly an Assistant Professor in Clinical ...
Health Care Professionals
Alena Annbalou Hasenburg
Dr. Alena Annbalou Hasenburg is a resident physician in Hematology, Oncology and Cancer Immunology at Charité – Universitätsmedizin Berlin, Ger...
Elena Elez
Dr Elena Elez is a medical oncologist and head of the Gastrointestinal Tumours area at Vall d’Hebron Hospital (HUVH) in Barcelona, where she has ...
Gianluca Mauri
Gianluca Mauri received a degree of Doctor of Medicine and Surgery at Università degli Studi di Milano-Bicocca, and a degree of Medical Oncolo...
Loredana Vecchione
Dr. Loredana Vecchione is a board-certified Hematologist and Medical Oncologist at Charité – Universitätsmedizin Berlin, Germany. She obtained ...
Manon Spaander
Prof.dr Manon Spaander is a professor in early detection and screening of premalignant gastrointestinal diseases at the department of Gastroenterol...
Sophia Harmer
Sophia Harmer, originally from Vienna, she moved to London in 2023 for her MSc in Health Psychology at UCL. She has since been working as a Rese...