DiCE General Assembly & 9th Annual Masterclass 2024

Munich, Germany, Jun 27, 2024, 9:00 am
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DiCE General Assembly & 9th Masterclass

held in Munich, 27 – 29 June  2024

We brought together our Member Organisations across Europe to maximise impact in patient advocacy. The diverse interactive programme included innovative hands-on workshops, scientific lectures, and networking opportunities. Don’t forget to revisit the agenda and download the presentations from the various speakers.

Agenda and Presentations

09.00 - 13.00Registration
12.00 - 13.00Buffet lunch
13.00 - 14.452023 DiCE Annual General Assembly*
14.45 - 15.00Break
15.00 - 17.00Session 1: Update in Science
Download presentationDr. Cathy Eng, Epidemiology of GI Cancers in Young Patients
Cathy Eng

Dr. Cathy Eng

Prof. Cathy Eng, Co-Director of GI Oncology and Co-Leader of the Gastrointestinal Cancer Research Program at Vanderbilt-Ingram Cancer Center, Nashville, Tennessee, USA.

As a medical oncologist and professor, Prof. Eng conducts clinical research at Vanderbilt-Ingram Cancer Center in the Department of Medical Oncology. She has been involved and helped lead cooperative group trials, pharmaceutical trials.

Her primary research focus is on phase I-III clinical trial development using novel therapeutics inclusive of blood and tissue correlatives for biomarker discovery and enhanced drug utilization in the treatment of colorectal, anal, and appendiceal cancers.

Download presentationProf. Thomas Gruenberger, Advances in Liver Surgery for mCRC
Thomas Gruenberger

Prof. Thomas Gruenberger

Prof. Thomas Gruenberger is currently Chair of the HPB center of the health network Vienna and heads the surgical Department of the Clinic Favoriten. He additionally holds the Chair of HPB-Surgery at the Sigmund Freud University, Vienna.

He specializes in abdominal surgery and is an expert in tumors of the liver, the pancreas, the biliary tract, and gallbladder. He is also an active member of the Austrian Society of Surgical Oncology (ASSO) and is active as a member of the European Society of Surgical Oncology (ESSO), as well as a member of numerous other specialist associations.

Additionally, he trains prospective medical practitioners and nursing students and is in demand as a consultant, both at home and overseas. Prof. Gruenberger conducts intensive research work in the field of oncology, which is published in numerous scientific publications.

Download presentationDr. Myriam Chalabi, New Approaches in treating GI cancers
Myriam Chalabi

Dr. Myriam Chalabi

Dr. Myriam Chalabi, Internist, the Netherlands Cancer Institute, Antoni van Leeuwenhoek.

She is the lead investigator (PI) of several neoadjuvant immunotherapy trials in gastrointestinal cancers, including the globally renowned NICHE study, in which patients with colon cancers were found to have impressive responses after a short duration of neoadjuvant immunotherapy.

Her research focuses on early innovative combination immunotherapy trials with a strong focus on translational research to better understand the drivers of response in these tumors and find novel immunotherapy combinations.

Her main goal is to improve immunotherapy for patients with gastrointestinal cancers.

Prof. Eric Van Cutsem, Open discussion
Eric Van Cutsem

Prof. Eric Van Cutsem

As co-founder of DiCE and renowned Professor of Clinical Digestive Oncology, Prof. Van Cutsem is the organisation’s guiding voice on all medically relevant matters.

Following his retirement in 2023, he is professor emeritus and with formal duties in the Department of Digestive Oncology at University of Leuven (KUL) and University Hospitals Gasthuisberg, Leuven, Belgium. His research focuses on the development of new treatment strategies for GI cancers, including drug development, and identification of molecular markers and diagnostic tools.

He co-founded ESMO GI, and is Chair of the meeting in Munich, Germany this year. He serves/served on the board or key committee of numerous influential organisations and task forces.

17.00 - 17.15Discussion and Key Takeaways from Day 1
*DiCE Member Organisations only
09.00 - 09.05Welcome to the Masterclass Day 2
5TH Anniversary Celebration
09.20 - 10.30Session 2: For and From Members
Download the Community Health Association Romania presentation
Download the Dance With Cancer Turkey presentation
Download the EuropaColon Portugal presentation
Download the FAPA Belgium presentation
Download the MRCCR France presentation
Download the No To Cancer Slovakia presentation
Download the Onkoalliance Latvia presentation
Update on DiCE grants and support
Updates from Members supported via DiCE grants + inspirational projects
Policy update
11.00 - 11.30Group Photo + Break
11.30 - 13.00Session 3: Health Technology Assessment for Better Outcomes
Download presentation
HTA4Patients Training: Preparing Patients for the EU HTA Process
Carolyn Ingram
Carolyn Ingram

Carolyn Ingram

Carolyn Ingram is a public health researcher and current PhD candidate at University College Dublin SPHPSS.

Her doctoral research explores access to healthcare amongst individuals experiencing homelessness in Dublin. In addition to her work at UCD, she has been part of the Authoring and Training Group in the HTA4Patients Project at EUPATI.

Finn McCartney
Finn McCartney

Finn McCartney

Finn McCartney is the HTA4Patients Project Coordinator at EUPATI, a non-profit that provides educational and trainings to patients, patient organisations and other stakeholders in the healthcare space.

The focus of his project has been the creation of a new e-Learning course and training sessions on the EU HTA regulation to prepare and build capacity in the patient community on this process.

Dr. Mitchell Silva (Patient representative), EUPATI Chair
Mitchell Silva

Dr. Mitchell Silva

Mitchell obtained a master degree in Bio-Engineering and a PhD at the University of Leuven, Belgium.

He is also founder of Health2.0 Chapter Belgium, an organisation promoting innovation in the digital health sector. Mitchell is a patient advocate for rare diseases.

Workshop
13.00 - 14.00Lunch
14.00 - 15.30Session 4: The Early-Age Onset Project
Book readings + Discussion
Introduction to ENTERO
15.30 - 15.45Break
15.45 - 17.00Session 5: Physical Activity for Prevention and Preservation
Download presentation
Rebel To Be Well, Outdoor Against Cancer
Ph.D. Rūdolf Cešeiko
Rūdolf Cešeiko

Ph.D. Rūdolf Cešeiko

Ph.D. Rūdolf Cešeiko (Riga, Latvia) is an exercise physiologist and leading specialist at the Exercise Oncology Clinic.

With a particular interest in exercise oncology, his main work is to elucidate research results in aerobic endurance training and neuromuscular force-generating capacity in clinical care. The essential purpose of his research and clinical practice is to identify effective exercise programs for cancer patients and survivors to develop effective tools for prevention, treatment, and rehabilitation.

Dr. Tom Degenhardt
Tom Degenhardt

Dr. Tom Degenhardt

Dr. Tom Degenhardt, OAC Medical Director and General Practitioner, Munich, Germany

Tom he loves being outdoors. As a passionate climber, skier, hiker, paraglider he knows about the positive impact on his well-being during and after active time outdoors. Fresh air, good company and physical activity is his secret recipe for inner motivation and resilience.

As a Gynecologist and General Practitioner with a special interest in research and treatment of cancer he is always trying to help patients improve their quality of life and outcome. Sport is the best evidence-based and highly effective supportive therapy without any negative side effects therefore his goal is to motivate all patients to be active. OAC is a great opportunity for patients to meet, exchange and improve their health status and fitness level in a friendly but professional environment.

The combination of profession, personal interest, and high efficacy of physical activity is the basis for his commitment to OAC.

Petra Thaller
Petra Thaller

Petra Thaller

Petra Thaller OAC Founder & President

We need to ensure that everyone gets the opportunity to rebel for their own health.” -Petra

What does "Rebel to be Well" mean? Petra has been a rebel all her life. Her motto: “Rules are meant to be broken - for my well-being and that of others.” She has always brushed aside expectations about what women should or shouldn't do. Whenever unease crept in, she rebelled. Rebellion is a good thing: for independence, responsibility, education, and empowerment. We are in a time of rebellion and should capitalize on it.

With her background in Communication Sciences, Psychology, and Business (M.Sc.), she understands the importance of health literacy, as it empowers us to make informed decisions and proactively promote our well-being.
"Rebel to be Well" is a call to action. It means questioning conventions and boldly advocating for our health.

Workshop
StepApp Update
17.00Discussion and Key Takeaways from Day 2
20.00 - 22.30Official Dinner
09.00 - 09.05Welcome to the Masterclass Day 3
09.05 - 11.30Session 6: Communications and Dissemination
DiCE Communications Update
Insights and Inspirations: Learning from Other Organisations
Download the Debbie's Dream Foundation presentation
Download the My Gut Feeling presentation
Download the Global Colon Cancer Association presentation
Session 7: Launch of my My DiCE Companion
Download presentation
The Journey and Features of My DiCE Companion
Real Stories from My DiCE Companion users
Bringing My DiCE Companion to Patients across Europe
11.30 - 11.45Close of the 8th Masterclass

Photo gallery

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