Eurordis launches Rare Barometer

April 2, 2019

EURORDIS, through its Rare Barometer programme, has launched a new survey on rare diseases/ rare cancers patients’ experience of treatment. The purpose is to highlight unmet treatment needs.

Yes, it is another survey…! However, the results of the survey can be very useful for the advocacy work we do in the field of rare cancers and would complement other survey’s results you may have carried out for your rare cancer.

We have a team of professional researchers, specialised in surveys, who shall be able to conduct a thorough analysis of the responses received.

The survey is available in 23 languages and is intended for patients, their family members and carers. All responses are anonymous and will be kept in secure storage only accessible to our research team.

Read more on the Eurordis website.


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