rare cancers
Raising Awareness for Rare Cancers – Anal Cancer Awareness Day March 21
Anal cancer is a rare cancer on the rise. In the EU 9.249 men and women were newly diagnosed with this cancer, in 2020
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March 22 is Lynch Syndrome Awareness Day
Lynch Syndrome is the most common inherited cancer syndrome in the world, with an estimation of 1 in 370 people carrying the genetic mutation.
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Recognising Hereditary and Rare Cancers – An Overview from our Member Organisation FAPA
Rare Diseases in Focus – An Overview of FAP and Lynch Syndrome from our Belgian Member FAPA
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European Network Works to Better Quality of Life for CCA Patients
European Network works to better the quality of life of patients with the rare digestive cancer – CCA
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On Rare Digestive Cancers – Conference Highlights Key Cholangiocarcinoma (CCA) Patient Issues
Digestive Cancers Europe Update – Key Issues Facing People Living with Cholangiocarcinoma as per AMMF UK Charity
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New Patient Leaflet Available for Patients with CCA and Gallbladder Cancers
Trusted Information from EURACAN on Bilary Duct and Gallbladder Cancers
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EMA Approves New Treatment Option for Certain Cholangiocarcinoma Patients
Rare Digestive Cancers – EMA Approval of New Treatment Option for Certain Cholangiocarcinoma Patients
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Pasykaf Gains First Prize for EU Health Award with HPV Elimination Programme
EU Health Award recognises Digestive Cancers Europe Member Organisation PASYKAF for HPV Elimination Programme
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Eurordis launches Rare Barometer
EURORDIS, through its Rare Barometer programme, has launched a new survey on rare diseases/ rare cancers patients’ experience of treatment. The p...