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Anal cancer is a rare cancer on the rise. In the EU 9.249 men and women were newly diagnosed with this cancer, in 2020
...March 22 is Lynch Syndrome Awareness Day
Lynch Syndrome is the most common inherited cancer syndrome in the world, with an estimation of 1 in 370 people carrying the genetic mutation.
...Recognising Hereditary and Rare Cancers – An Overview from our Member Organisation FAPA
Rare Diseases in Focus – An Overview of FAP and Lynch Syndrome from our Belgian Member FAPA
...European Network Works to Better Quality of Life for CCA Patients
European Network works to better the quality of life of patients with the rare digestive cancer – CCA
...On Rare Digestive Cancers – Conference Highlights Key Cholangiocarcinoma (CCA) Patient Issues
Digestive Cancers Europe Update – Key Issues Facing People Living with Cholangiocarcinoma as per AMMF UK Charity
...New Patient Leaflet Available for Patients with CCA and Gallbladder Cancers
Trusted Information from EURACAN on Bilary Duct and Gallbladder Cancers
...EMA Approves New Treatment Option for Certain Cholangiocarcinoma Patients
Rare Digestive Cancers – EMA Approval of New Treatment Option for Certain Cholangiocarcinoma Patients
...Pasykaf Gains First Prize for EU Health Award with HPV Elimination Programme
EU Health Award recognises Digestive Cancers Europe Member Organisation PASYKAF for HPV Elimination Programme
...Eurordis launches Rare Barometer
EURORDIS, through its Rare Barometer programme, has launched a new survey on rare diseases/ rare cancers patients’ experience of treatment. The p...