The International Liver Cancer Movement (ILCM) is the first-ever global initiative uniting patient groups, scientific associations, public health institutions, industry, and independent advocates in the fight against liver cancer. Since its creation in 2021, the ILCM has rapidly become a driving force for change, building a strong and diverse community committed to one shared vision

In 2022, ILCM launched the first-ever global Patient Charter for Hepatocellular Carcinoma (HCC), the most common type of liver cancer. This living document reflects the collective voice of patients, caregivers, and stakeholders worldwide.

The charter sets out key principles and rights that every liver cancer patient should expect, including:

1. Patients need liver cancer to be prioritised by policymakers and addressed in national cancer strategies. This must include HCC prevention through elimination of viral hepatitis as a public health threat by 2030.
2. Patients need timely access to an early and accurate diagnosis and assessment of their HCC, leading to timely intervention and, with that, improved survival.
3. Patients need access to a multidisciplinary team to provide comprehensive care, considering both the liver condition and cancer treatment.
4. Patients need personalised care which considers their unique needs and preferences, taking into account personal milestones and treatment goals.
5. Patients need shared decision-making to be recognised and implemented during their treatment pathway.
6. Patients need access to early detection services, care, and treatment without being stigmatised.
7. Patients need a commitment to increased funding and further research for HCC.

Read the full charter here: HCC Patient Charter

Building on the Charter, ILCM developed the Liver Cancer Rights Now Tool – a practical online resource designed to help patients, caregivers, and advocates understand and claim their rights.

Explore the tool here: Liver Cancer Rights Now

Author:

Nikola Mihinjač