Mlađan's story
Mlađan's story
Your energy and self-belief that you can overcome the disease are so important. The more time that passes after my transplant, the easier and easier it is for me. The routine, the check-up tests, and those worries become less and less.
On January 29, 2023, sitting at home in the evening, I felt severe pain in my abdomen. I fell to the floor and writhed in almost unbearable pain while my wife called an ambulance. Thanks to the fast arrival of the ambulance and the professionalism of the hospital staff, I was taken to surgery very quickly, where life-threatening bleeding was stopped.
After surgery, I was weak and completely helpless, unaware of the situation around me. It is the most terrible feeling when you have no control over anything, absolutely nothing. I slowly came to consciousness with the great help of my wife and friends, who visited me and showed steadfast support. I decided that I would not give up, not only for myself but also for their lives. I couldn’t just walk away and leave the people who truly love me.
That was the moment when my NEW LIFE happened. I would say that, philosophically, I was born again.
I was diagnosed with liver cancer and liver cirrhosis. Still, I didn’t even have time to process that information before a new attack on my mental well-being happened: I was diagnosed with hepatitis C. I thought, well, it is what it is, and I hoped there was nothing worse to come. I had had a relatively entire life, and it was easy to come to terms with the fact that the chances of continuing life were relatively small, but I decided to do everything possible to survive.
After finding out everything we could about my illness, a plan to save my life slowly began to take shape. The first signs of salvation were that my hepatitis C could be cured with drugs. I was approved for a very expensive drug, and I started swiftly with the treatment. Incredibly, after one and a half months, I got the news that I no longer have hepatitis C. Only the cancer and cirrhosis remained. I said, “Great, let’s keep going”.
After the hepatitis C was cured, I was told that I was a candidate for a liver transplant. This was the only way to save me, so I was relieved. I often wondered what I had done to deserve such care and attention from the world and the doctors.
To have a transplant, you must be in good physical and mental health and forget all bad habits. There is a significant number of resources and knowledge invested in your recovery. So, I felt I had no right to behave irresponsibly towards those who love us and the society that allows us to stay alive.
I prepared for my transplant on all levels, from my nutrition to my physical condition. I recorded my blood pressure, sugar levels, temperature, and body weight daily and brought them to my weekly checkups. This made it easier for doctors to plan my treatment and encouraged me because I felt I was also an active part of the solution.
Seeing everyone doing their best, I started believing I would be healed.
In the time waiting for a transplant, I had a lot of tests at the day hospital. Over 7-8 days, I had a gastroscopy, colonoscopy, EKG, CT, and X-ray. There, I met a patient who had had a liver transplant ten years ago but was having kidney problems. From him, I learned a lot about transplants: the procedure itself, recovery, and how to help the medical team, including the possibility of problems with kidneys caused by taking anti-rejection drugs. I think every patient should have a mentor like him, as it helps tremendously in the recovery process.
It is essential to be aware that there is no guarantee of a good outcome after a transplant, but the chances for a new life drastically increase. When joining the waiting list, you must first agree on all possible risks. Next, you become a reserve candidate (if a transplant candidate does not turn up or is not physically fit enough for a transplant, you take the transplant instead).
I was at the Croatian seaside when I got my first call to be a reserve, and I came to the hospital (in the capital, Zagreb) in the evening. On arrival, tests (urine, EKG, blood) were carried out to establish the ability to undergo the procedure. The first time I was reserved, the primary patient received the transplant, but I was glad to know what awaited me when I was called again. The next time I had a call from the hospital was in the evening. Again, I was at the Croatian seaside and arrived in Zagreb around midnight.
The surgery was completed early in the morning. I woke up like a Borg robot, full of catheter tubes and clips. When I heard that the transplant was successful, I felt relief and focussed on a quick recovery. That day, I sat alone in bed and thought I was saved. My wife came to visit and saw that I was ok. I was happy that she could also finally breathe a sigh of relief because it is a horrible agony for your loved ones. It is often more difficult for them than for patients because the patient is focused on healing, and loved ones usually lose all hope. My dear wife knew I was indestructible, which kept her above water.
Your energy and self-belief that you can overcome the disease are so important. The more time that passes after my transplant, the easier and easier it is for me. The routine, the check-up tests, and those worries become less and less.
I know that my life has been turned upside down, and I will make the best out of that situation. I am aware that I fight against demons such as the possible return of cancer, kidney failure, or something else.
I am grateful for the time I have been given and try to use it as best as possible.
Only with excellent family support, common sense, and a realistic understanding of the situation can you stay on the surface of life.
We want to hear your story
We hope that this section of our website will provide the platform and inspiration for patients/survivors to tell their own story. If you would like to contribute to this page please contact us.
Samantha
Finding Strength in the Storm: My Journey with CRC Before my cancer diagnosis, I was a busy, active mother of two, pursuing a social work degree an...
Mlađan
On January 29, 2023, sitting at home in the evening, I felt severe pain in my abdomen. I fell to the floor and writhed in almost unbearable pain wh...
Laura
In October 2022, I discovered that I had a cavernous angioma in my liver. I began feeling the first symptoms (nausea and heaviness in the stomach) ...
Emanuela
The diagnosis dates back to May 20, 2021. Leading up to that time, I had experienced some difficulties. In August 2020, I lost my mother, and the...
Claire
Two and a half years ago, I started having trouble swallowing bread and chicken; it felt like the food was getting stuck in my food pipe and wouldn...
Harry
Update 10 March 2024 A lot has changed since my first diagnosis on 27 May 2021. As mentioned in earlier updates, I was first diagnosed with ‘...
Kjell
Pancreatic Cancer Reflections: Between Hope and Despair Kjell Olof was born in 1942 in Sweden. During the summer of 2021, he began experiencing per...
Claudia
My story, like all of ours, is “unique.” I have always been labelled as “health-conscious,” sometimes with gentle irony and...
Teodora
I’m Teodora, and I’m from Romania. My story is born from grief and longing for the life I was just beginning to build with someone when...
Georgiana
To everyone reading this story, my name is Georgiana. A few months into my 34th year, I was diagnosed with mixed gastric adenocarcinoma, or, more s...
Helen
Hello, I am Helen Canning. I live in Suffolk, England, with my husband Vincent and our two daughters, Erika (6) and Marla (4). I used to have a b...
Richard
In the second half of 2016, I started experiencing symptoms such as a feeling of acid reflux and a burning in my oesophagus, some difficulty in swa...
Katell
Katell Maguet is a 43-year-old French woman who lives in The Netherlands. She shared her emotional story with colorectal cancer to give a voice to ...
Isabelle
Isabelle Chabrier is 56 years old, and lives in Paris, France. She shares her successful journey with pancreatic cancer. Cancer is a common ...
Sven
Sven Tägil is a retired professor of history who will turn 93 this autumn, possibly making him Sweden’s longest pancreatic cancer survivor. ...
Ida
My name is Ida Verbunt, and I am Harry Verbunt’s wife and carer. I am 56 years old, and I’ve known Harry since childhood. We grew up in...
Helena
My name is Helena D’Arcy. I live in Sweden and am a full-time working mother of seven who has always been super-healthy and active. Sh...
Ceri
Ceri Steele – diagnosed in October 2019 My name is Ceri Steele, I was diagnosed with oesophageal cancer on 17 October 2019, three days before my ...
Mia
Hello, my name is Mia, I am 57 years old and live in Finland. I am a mother to two boys and a girl, and twenty years ago, I was diagnosed with Lync...
Mark
My wife, Barbara, was diagnosed with stage four colon cancer in November 2006. I became a carer very suddenly! Maybe I shouldn’t have been so...
Anders
My Journey with Pancreatic Cancer, five years later… Hello, my name is Anders Bovin, I am 80 years old, and these days I spend my time between Sw...
George
It is with great sadness that we recognize the passing of George in January 2023. George was a remarkable young man whose strength and kindness rad...
Laure
I am the caregiver of my husband, Guillaume, who was diagnosed with metastatic colon cancer in January 2021 at 43. We have two children who are now...
Stephen
I am a colorectal cancer survivor. My local hospital asked me to set up a peer support group. We planned a launch in spring 2020, but so did COVI...
Mike
Hi, my name’s Mike and I live outside of Paris, France. I’m originally from the UK but have lived in and around Paris for the last 25 years. I ...
Andi
My name is Andi and I’m a 39 years old Romanian, husband and father of two wonderful daughters. I’ve been working in the Pensions &...
Angelica
Angelica is a survivor and patient advocate who does not take no for an answer! She lives in Sweden and volunteers closely and personally with canc...
Hilde
I am Hilde, a mother of two, partner, medical doctor, and a Lynch patient. I am the first in my family with this diagnosis. When I was diagnosed wi...
Leon
Hello, my name is Leon. I’m 45 and I live in Tilburg in the Netherlands close to the Belgian border. I work for Stichting Darmkanker (Colon Cance...
Samo
Hello I’m Samo. I’m pleased to be able to share my story with you as I want it to be an inspiration for everybody who turns 50 and consequently...
Radek
Hello, my name is Radek. I would like to share my story with you about living with pancreatic cancer. It began with the onset of jaundice that made...
Eva
Eva shares her experiences with pancreatic cancer and the importance of staying physically fit throughout the process – from diagnosis throug...
Patrycja
Patrysza spoke about her journey with pancreatic cancer at our Masterclass 2021 – she shared the importance of mental health for her life with th...
Vincent
Hi, I’m Vincent, I’m from Gouda in the Netherlands and I was diagnosed in 2015 at 42 years old with stage IV colorectal cancer and a low-grade ...
Anikó
Anikó from Hungary was diagnosed with hepatocellular carcinoma (HCC) in 2015. HCC is the most common type of liver cancer accounting for approxima...
Ireneusz
It is with great sadness that we recognize the passing of Ireneusz in December 2021. He leaves behind his wife Beata. Ireneusz was very active and ...
Daksha
Dr Daksha Trivedi is a Senior Researcher in Public Health at the University of Hertfordshire in England. Daksha was diagnosed with oesophageal canc...
Milan
By the end of 2000 I felt very tired. Urges of going to the bathroom were sudden and harder to control. I also often felt very sleepy during the da...
Dave
Dave Chuter, active patient advocate was diagnosed with oesophageal cancer in 2006. Following successful treatment, he returned to work and alongsi...
Stefan
I’m Stefan. I’m a co-founder of Digestive Cancers Europe and was the organisation’s CEO from 2019 to the beginning of 2021. I would like ...
Robyn
I first realised something was wrong when – at 28 years old – I collapsed. It was 2005, and I was taken to hospital for several tests after it ...
Celeste
“When I was first diagnosed with colon cancer it was quite complicated because I did not know what I had…” Listen to Celeste̵...
Marta
“Have you had a colonoscopy?” I was asked this question by my new doctor the first time that I saw him after I retired. I had been a he...
Barbara
No-one expects to get cancer. No matter what the statistics show, very few people relate the figures to themselves and, I must admit, it was the sa...
Heidi
Until April 29th, 1999, when I was 45, I was absolutely convinced I had the lease of eternal life. I had a sweet daughter , a careful husband and a...